On the outside, Capri appears to be a spirited little girl. On the inside, Cystic Fibrosis is plaguing her body. A mucus buildup means she dehydrates easily and is on about 50 pills a day, plus three breathing treatments a day. She takes enzymes every time she eats.
Capri says simply, "I don't like it."
Nicole tries to keep the family positive, but it's hard.
She says, "This year has been a lot tougher emotionally because she understands what terminal illness means and no child should understand the meaning of that word."
And for the first time, this year Capri asked her mother, "Am I going to die?" Nicole says, "I didn't know how to answer the question. But I knew I had to. I knew I had to answer it for her."
Capri is one of three Oklahomans who have a specific gene causing her CF. a new trial medicine being developed for that gene could help stop her symptoms.
Nicole says, "There's definitely some hope."
The family is moving to Tennessee for the trial and the chance Capri could have a cure. For the Faulks, the desire to balance life, heath and hope is enough reason to leave their Oklahoma roots; potentially letting Capri grows past this lifelong struggle.
You can find more about "Capri's Crusade" here.